Apr 14, 2011
I've written most of our family an update on Brady's appointment but will also share here too...sorry if it is a bit redundant for some of you. :) Zac and I met this morning with the dr. and went over Brady's test results...lots of graphs and charts that compare his *skills* with other kids his age. His verbal skills (as far a what he understands conversationally and his vocabulary) were pretty much through the roof. Then when it came to math skills or anything that required any type of attention span was extremely poor. His coordination wasn't good...he couldn't complete tasks like standing on one leg or walking with one foot in front of the other....he couldn't really wipe his nose by himself...stuff like that. Also his social skills and the chart that shows his levels of *frustration* and anxiety were also through the roof...a normal kids would be in the 80 to 100 range and Brady was past 120. So, all that to say that Brady has been officially diagnosed with Asbergers Syndrome, he also tested very high for ADHD (kind of goes with Asbergers) and he will also need speech therapy as he studders VERY badly when he gets excited at all. My mind has been whirling all day...I knew this would be the outcome but there's just something about talking to a professional and looking at charts and graphs and all that jazz - it was just so real. Basically Brady has no type of sensor on social skills, he has no self control. He immediately does what comes to mind and Zac and I have had to closely moniter every move he makes for years now...it is exhausting. We were advised to continue some type of therapy for our family as having a child with Aspergers puts a huge strain on your family dynamics. Things have been this way for awhile...simple things like going to a restaurant or over to someone's house for dinner have basically been out of the question for us for years. The mall, church, VBS, play dates...anything....has presented a huge challenge. So...now that we have a diagnosis we are hopeful that we can now find someone to help us with tools - Brady doesn't respond to discipline or correction like an average child would....he doesn't have empathy for others....he is obsessive when his life changes in any way. Right now with the baby coming, well...the Dr. said that we can just expect him to be very obsessive and volatile.He senses that something is happening and it's upsetting to him. Dr. McGee said that he knows of no good programs in this area for children with Asbergers and that no schools in Hamilton County cater to this type of disability. I'm realizing more and more that I'm not going to be able to teach him at home...I will if we stay here...but this is one of the reasons why we long to move to an area where there will be more resources for our Brady Bunches. We have an overflowing amount of love for him and want to be the best parents we can be...at the same time there is a part of us that feels defeated and totally exhausted with the daily task of just living with him. I know that sounds harsh...but it is our reality and it's best to face the emotions instead of trying to ignore them or cover them up. I wish I was handling this whole situation with a little more grace and dignity but right now it just hurts. It's hard realizing that expectations you have for your life...good expectations...aren't necessarily the ones that God has for you.